Welcome to Advocating for Health: The Many Faces of Health & Illness! This page is dedicated to my personal experiences with chronic health conditions & the medical system. This site is not a medical site/blog page, but rather, a commentary on my own personal journey through the medical world, my battles with symptoms and side affects related to the spinal abnormality called Spondylolisthesis, auto immune diseases, chronic illness & pain, and all of the details in-between.
Welcome! ... What is it like to live with a chronic illness?
Dealing with any chronic health condition, and/or illness, can be a daunting task in-and-of itself. While there are numerous aspects that affect one's everyday functioning and survival, one of the greatest frustrations is the lack of understanding, compassion, and tremendous judgement experienced by an individual struggling with any chronic health problem. While it may be difficult to relate to someone who battles a chronic illness, it is so important for those on the outside looking in to make their best attempt to understand their loved one's challenges.
Several years ago my mother stumbled upon a wonderfully written document called "The Spoon Theory." This piece details what it is like to live with a chronic health condition in simple and relatable terms. In my opinion, it is a must-read for anyone whom is seeking to better understand what it is like to live in a body which is chronically ill.
Trust me ... this piece is enlightening and extremely insightful.
This blog is a commentary on my own very personal, and sometimes very painful and challenging journey, with chronic health conditions (including the auto immune diseases Psoriatic Arthritis & Ankylosing Spondylitis, Fibromyalgia, Hashimoto's Disease, Hyper-Mobility Syndrome, PCOS, as well as a spine condition called Spondylolisthesis), and the medical system. While I am not a doctor nor a medical professional of any kind, I am most definitely one very experienced patient! My hope is to share my gained knowledge and experiences with others who deal with similar issues.
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Key Subjects Discussed
Sunday, March 1, 2009
Spondylolisthesis
About Me
- Cat
- My interest for all things related to health & illness arises from my own struggles with chronic health conditions. I have found it most therapeutic & empowering to write about my many experiences within this realm. Through education, my own research, and my ongoing personal challenges, I am teaching myself how to become my own best advocate. To learn more about me, please see the page entitled "About Cat" located at the top of the page. If you have any questions or comments, you are welcome to contact me through the "about" section listed above, or email me at healthandillness@gmail.com. Please note that this address is also linked through my profiles. Blessings of health, energy and peace.
Brenna,You put into words exactly how I feel! I'm sorry you suffer from chronic pain. So many don't even begin to understand. My husband needs employment & even though the family knows I have a chronic illness, I get remarks like why don't you get a job? They don't know how I would love to get a job!But I know I couldn't handle it. There's no compassion/empathy anywhere around me. I hear I need to.... "get over it." The day/s I do feel close to normal, I overdo it! I can so relate! I'll think of you & I know it will give me strength. I hope you will have one of those "close to normal day/s soon!" Keep blogging! I honestly enjoy!! And love those kittys for me!
ReplyDeleteHello Marilyn, Thank you so much for your message, and words of encouragement and support. I truly appreciate that you took the time to read my blog and respond. Obviously, we can relate well to each other .. and i have tremendous compassion for what you deal with everyday. It's not fun, not desired, and like anyone else, we do want to be active members of society, our families and our lives! Period. We do the best we can, and are constantly taught the lesson of "balance," as we must figure out how to accomplish a lot in a short amount of time. And, as you said, we often "over do it" when we experience those "good days." I have found it so important to my life and sanity to have at least a few people who truly understand what it's like to live in a body which climbs an uphill battle with everyday that passes. While few in our lives have the compassion we need so desperately, there is most certainly some comfort found thru connections with others like yourself. Please feel free to email me anytime! You may also message me thru catluv.aidpage.com. I hope to hear from you in the future! Blessings of love, laughter and health, Brenna
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